TJ’s Takes

Meet TJ

“I was diagnosed with autism in 1993, when I was three years old. From my earliest memory, I've always been passionate about storytelling, whether in books, in film, or in video games - to follow that passion, after graduating high school, I studied English at UIC and the University of Minnesota with the end goal of becoming a teacher. A profoundly difficult time in graduate school, which eventually forced my withdrawal, forced me to understand my autism diagnosis more closely, as I now understood that without that understanding, such misfortunes would inevitably repeat themselves. My relationship with Have Dreams began in 2017, when I joined the Have Dreams Academy program. An unintended side effect of my time in that program was my realization of just how profoundly stacked the odds are against autistic people to thrive in the world - by program's end, my desire to help create a world more attuned to the needs of people on the spectrum had awakened. To that end, after my time in Have Dreams Academy I began working with Have Dreams directly, first as an intern and then on a more formal basis.”

TJ’s Book and Film Summaries

In a Different Key by John Donvan and Caren Zucker

In a matter of decades, our understanding of autism has transformed it from a rare form of childhood schizophrenia to a neurotype characterizing an estimated 1 in 36 people now living. In a Different Key is the history of that transformation. Make no mistake, this is a history filled with misunderstandings, of bigotry, and of charlatans all too eager to take advantage of a vulnerable population for their own benefit. But it’s also a history of those refused to accept this status quo, who fought to create a more fair and equitable world for those who often couldn’t fight for it themselves. It’s a history of autism, yes, but In a Different Key also feels like a history of modern civilization in miniature. For anyone even remotely interested in autism, this book is essential reading. I should also mention that in 2022, the authors adapted their book into a documentary of the same name. Though only 100 minutes long, the documentary does an admirable job of condensing the major themes of the book, so I would recommend it, especially for those who may not want to immediately jump into a nearly 700 page book.


In a Different Key directed by John Donvan and Caren Zucker

When I learned that In a Different Key, the book I consider the definitive account of the history of Autism, had been adapted into a 100 minute documentary by the authors in 2022, I was a bit skeptical. The book is nearly 700 pages and spans close to a century - how could it possibly be adapted into a movie that didn’t even break the two hour mark? Well - I’m glad my skepticism didn’t get the best of me, because the movie turned out to be an admirable condensation of the major issues touched in the book. Instead of trying to retell the entire history of autism (which would’ve been a mistake), the film focuses on two primary figures: Don Triplett, the Mississippi man who was the first person ever diagnosed with autism, and Caren Zucker’s son Mickey, who’s currently living in a group home in Arizona. Cutting between the two men, the film uses the stories of their lives as springboards to discuss a wide variety of autism-related issues, including the history of the autism diagnosis, the fight to achieve educational rights for autistic children, even institutional racism preventing minority groups from finding a proper diagnosis and treatment. For those who are interested in autism, but may not want to necessarily commit to reading a long book on the subject, In a Different Key is a worthwhile watch - and by all means, if you enjoy it, consider reading the book afterwards. It has everything the movie does, and much more.


The Speed of Dark by Elizabeth Moon

Winner of the 2003 Nebula Award (the sci-fi equivalent to the Pulitzer), Elizabeth Moon’s The Speed of Dark centers on Lou, an autistic man who works alongside a cohort of fellow autistics at a large pharmaceutical company. One day, an obnoxious new manager, in a misguided attempt to cut costs, pressures Lou’s cohort to undergo an experimental medical procedure that “cures” autism - with this, they’re forced to consider what undergoing such treatment would mean for their very identity. For a book written in the early 2000s, Moon is quite forward thinking in her awareness of issues that would only come to the forefront decades later - corporations refusing to understand the long term value of accommodating their employees, neurotypical people not taking seriously the opinions of their neurodiverse peers, etc. Lou, as a person, seems to have a good outlook on the shortfalls of the neurotypical world - his narration is often blunt and disarming, in a very funny way. But this is not a book that romanticizes Lou as some sort of neurodivergent rebel - while it does take time to portray Lou as someone who sees the hypocrises of the “normal” world, he also struggles to exist comfortably in it. This all comes to a head after that obnoxious manager is fired for ethics violations - now, they will be given the voluntary choice to undergo the procedure, with no negative consequences if they refuse. Some do, some don’t - we aren’t told Lou’s choice until later, and that choice caught me off guard: he decides to go through with it. We’re told that a primary reason for his choice stems from a childhood dream of working in space, and that someone of his type is unsuited for such a life - further, he argues that people change for any number of reasons, and such a change, when made voluntarily, is a valid one. His decision is not portrayed in an entirely positive or negative light - while we learn that he did accomplish his dream of working in space, he is, in some ways, a new person from what he was - he’s lost touch with his old friends, he enjoys different things, etc. Not surprisingly, this is a divisive ending, and one that I struggled to come to terms with. While I respect Lou for the thoughtfulness of his choice, I couldn’t help but walk away feeling like I was watching Winston Smith learning to love Big Brother, with Lou himself acting as his own O’Brian. It’s entirely possible he could’ve found success working in space while remaining autistic - why the two should be seen as mutually exclusive is never stated - but he’s been conditioned to accept otherwise. It isn’t hard for a reader to place the blame on the outside world for forcing Lou to believe this - Moon spent most of the book in portraying its hostility. Whether it’s corporate bigwigs who care for nothing outside a positive value on their balance sheet, neurotypical people who see themselves as the final authority for how the “real world” should work, hostile people resentful of the “special treatment” autistics receive - this is not a world that feels very welcoming to those who fall outside the straight and narrow. This is punctuated further by the fact that we are told that science has found a way to eliminate autism on the genetic level for all newborns - Lou and his cohort are basically the last generation of adult autistics. Any society that views a normally occurring divergence in the human neurotype as something to be genetically corrected is probably not going to be sympathetic to your existence. For Lou - as for some others in his cohort - the positives just outweighed the negatives, and it’s as simple as that. Perhaps this new Lou sees his choice as the correct one, and I can’t take that away from him. However, as I said before, it’s hard for me to view it positively. You’re going to face challenges whether you’re neurotypical or autistic - furthermore, the onus should not be on you to change when so many of those challenges are caused by others failing to take into account that differences within the human population are normal, and should be celebrated. Lou felt the choice he made was the right one - personally, I’d rather live in a world where people like Lou would never have to make such a choice.


The Autistic Trans Guide to Life by Yenn Purkis and Wenn Lawson

In its forward, Dr. Emma Goodall describes the premise of this book as follows: “…that people can be more content and engaged with life if they are true to themselves in safe environments.” The fact that this even needs to be said is a testament to how much work still needs to be done in the realms of disability and mental health - thankfully, The Autistic Trans Guide to Life is able to provide some of the necessary heavy lifting. The book is a guide in the literal sense: short chapters, broken down by subject, and written in a direct, conversational style that makes it ideal not just for autistic trans folks who are just starting to discover their identity, but also for their caregivers and allies who may not be as knowledgable on the subject. As a cisgender man, I more than appreciated how comprehensive it was.


(The) Curious Incident of the Dog in the Night-Time by Mark Haddon

When autistic secondary schooler Christopher Boone discovers his neighbor’s dog’s been killed, he decides to not only solve the mystery of the murder, but write a book about it too. Haddon’s unforgettable novel presents itself as Christopher’s book, told from his (very) limited first-person perspective that manages to feel simultaneously alien yet profoundly heartfelt.  Though Haddon portrays Christopher - a boy gifted with an extraordinary talent in math and logic - as singularly capable of solving the mystery, his portrayal of autism is not as one sided as it may appear. The novel is unafraid to examine the strain an autism diagnosis can place on a family - the characters try may try their best, but this does not prevent what are often intense and uncomfortable scenes of familial conflict. Nevertheless, these scenes of conflict are not given the last word, and the novel ends as both a celebration of the differences people like Christopher embody, but a dedication to try and create a world where people with those differences can thrive.


Unmasking Autism by Devon Price

Masking - defined as someone with autism hiding or suppressing aspects of themselves to appear more neurotypical - is a concept that has received more attention in recent years, and is the preeminent focus of Price’s book. Utilizing a combination of personal experiences and his psychological background (he’s a Loyola PhD graduate), Price not only vividly illustrates the intense psychological toll masking siphons from autistics, but - and this is critical - conclusively argues almost every person on the spectrum is forced to mask due to unfair, hypocritical, and in some cases, bigoted social norms. Despite, by necessity, having to wade through the mire of this shameful cultural baggage, the book is far from despairing - at its core, Price argues that if more autistics understand themselves and why they mask, it will not only make them more comfortable accepting their differences, but in the long run, create a more equitable world for everyone, regardless of neurotype. One of the best books on the subject of the past decade, destined to enter the pantheon of classics.


What I Want to Talk About by Pete Wharmby

As far as I’m aware, this is the only book that takes as its subject the notion of Autistic Special Interests. That alone makes it worthy of reading - however, to end this recommendation here would be in many ways selling it short. Wharmby does not just expound on the importance of Special Interests (though he does a great job at that too) - he uses those interests as a springboard to discuss what appears to be every relevant issue connected to autism in the 21st Century. This is accomplished in (at least in the ebook version I read for this annotation) a mere 119 pages - Wharmby is able to cram what feels like a lifetime’s worth of insight in such a limited space without ever feeling like he’s rushing. As far as value for time investment is concerned, this book is without peer in the realm of autism.